I always seem to find a funny side to things. Life is pretty funny if you let it entertain you, and I just decide to laugh when I can. Not taking it all so serious can really take the edge off, especially when it all really is super serious.
I realised ,that the very moment I am in is the only thing that is actually controllable.
Weirdly, the bigger the uncertainty, pressure, wanting to know an exact plan, the more I’ve internalised how much joy I can get just by focusing only on exactly what’s right in front of me.
I’m still in hospital. My exact trial date is still unclear because of big Pharma politics. I’m the only person currently waiting for a spot on this CAR - T cell trial. But there are other centres in the world who haven’t had a patient on the trial and the Pharma company wants those centres to have somebody on the trial before allowing me to have mine here in London.
The costs are immense, I have limited other options and big Pharma is being political.
The other option is a drug that is only available on private healthcare which I had infused yesterday. This new drug might get me back into the remission and then I would go straight to Stem-cell transplant. But the CAR T cell treatment is likely a deeper remission and would mean a higher chance of the cancer not coming back. Maybe.
There are so many moving parts, conventional chemo is failing, dates are being changed.
I just want to live so yesterday’s luxury seemed ridiculous 😂
Be interested. Become interesting.
Follow our journey. @sociallypowerful
@themansellfox @mrjameshacking @headofbrand
#headofbrand #Farringdon #fitnesstransformation #healthyliving #crossfitmotivation #londonfitness #makeithappen #keepmovingforward #influencermarketing #socialmediastrategy #entrepreneurlifestyle #agencylife #creativeagency #londonist #breakinglegs #london🇬🇧 #vlogger #friendstime #businessopportunity #londonbusiness #inlovewithhim #cancermemes #cancersurvivor #acutelymphoblasticleukemia #cheatingdeath #peopleoflondon #death #survivingcancer #stemcelltransplant #thisislondon